Nine-year-old Amber Salter lives in Halifax, Nova Scotia. When she was five years old, she was diagnosed with celiac disease — but only after two years of being very ill.
Recently, she was asked to write a biographical sketch for her writing badge in Girl Guides. Here, in her own words, is Amber’s story:
“When I was three, I was sick every other day. By the time I was four, I was sick a lot. I had pains in my legs and head and most of all, my stomach. By the time I turned five and started school, I was sick every day.
Everything changed one winter day, when I went for a walk in the woods and on the way back, I got very sick and fell down on the ground in the snow. My mom had to carry me back to my house and it was then when she knew something was very wrong.
She took me to our family doctor and asked for help. I had to get blood work done and it came back with a high level of TTG. TTGs are a measure of gluten levels that affects someone’s body in a negative way. Since my levels were high, I had to have day surgery.
The doctor did a biopsy of my intestinal tract system. I remember the surgery like it was yesterday. I was so brave. The test came back positive. I had celiac disease. I was happy that the doctor found out what was making me sick.
Now the fun began of trying to find good gluten free food for me to eat. It took a little while, but we found good brands. …Life is so much better now and everything is great.”
Amber was thrilled to share her story with Life After Gluten and she’s keen to help other kids.
Does your child have questions or concerns about celiac disease or gluten intolerance? They can write to Amber at email@example.com and she’ll respond in a future post.